This is a blog about Epilepsy, Mental Illness, and Advocating for someone I love.
This is the intensely personal and true story of my daughter’s struggle with epilepsy, the powerful medications used to control the seizures, mental illness, and how all of these things can get intertwined.
It’s about how this mixture became a threat to my daughter’s survival as well as to my own emotional survival.
It’s about the failures of our medical system, our doctors, and our health insurance industry.
And it’s about having to navigate everything as a single parent.
I hope that parents who find themselves in similar situations will read this blog and realize they are not alone, that other people have struggled to deal with the same problems and issues, and that there is hope.
My goal is to openly discuss epilepsy and mental illness. If you have any comments or questions feel free to email me at bshufani@gmail.com.
If you’re new to my blog, this is where the story starts.